Network of New England
 Section 508 Compliance            + Larger Font | + Smaller Font             print this pagePrint This Page


annual report

Community Partners

conditins for coverage

CROWNWeb


data reporting

dialysis facility compare


emergency preparedness


Fistula First

5 Diamond

Grievance Policy

News Letters

Our Goals


patient services and community

quality improvement
Statistic Highlights

Voc Rehab state office

what's new

Emergency Preparedness

H1N1 Flu (swine-origin influenza A)

The Department of Health and Human Services has declared a public health emergency in response to recent H1N1 flu (swine-origin influenza A) cases. (http://www.hhs.gov/news/press/2009pres/04/20090426a.html.)



As a follow-up to that declaration, HHS has been working tirelessly to educate the public about flu precautions. The Centers for Medicare & Medicaid Services (CMS) is assisting the CDC in spreading helpful information and education about the H1N1 flu outbreak and preventive actions to slow its spread to your audiences. The widget to the left provides direct access to the CDC database for important and timely information including, investigation, "what you can do", as well as protection tips from the cause and spread of the disease and create better awareness of related symptoms.

More information is available at: http://www.cdc.gov/h1n1flu/.


Network memo to New England dialysis providers. All confirmed H1N1 flu cases in New England ESRD patients should be reported to the Network at 203-387-9332.

H1N1 Flu Resources in New England

Connecticut Department of Public Health
- State hotline and general information: 800-808-1987
- Interim Criteria for Submission of Specimens to the Connecticut Department of Public Health Laboratory
- New Testing Guidance: The outbreak of the novel H1N1 flu strain continues to evolve and is currently in a stage where there is sustained community transmission. The Department of Public Health (DPH) is currently NOT recommending H1N1 influenza testing in outpatients with febrile respiratory illnesses for surveillance purposes.
- If testing for novel H1N1 influenza is clinically indicated for certain outpatients, healthcare providers can request testing through a commercial laboratory, such as Quest Diagnostics.
- Specimens sent directly to the DPH lab from non-hospitalized patients without authorization will not be accepted. Test requests should be made by healthcare providers ONLY.

Maine Center for Disease Control and Prevention
- State hotline and general information: 888-257-0990 (M-F 9am - 5pm)
- NextTalk (deaf/hard of hearing): 207-629-5751 (M-F 9am - 5pm)
- Maine CDC Update on Novel Influenza A (H1N1)

Massachusetts Department of Public Health
- State hotline and general information: 211
- Interim Recommendations for Diagnosis and Control
- New Testing Guidance: CDC and MDPH recommend that testing and treatment be focused on those with severe respiratory illness and those at highest risk of complications from influenza. Individuals with mild illness should be advised to stay at home.

New Hampshire Department of Health and Human Services
- H1N1 (Swine) Influenza Interim Clinical Guidance
- New Testing Guidance: Now that novel H1N1 is well-established to be circulating in New Hampshire, it is neither necessary nor feasible to test for H1N1 in every individual with influenza-like illness. Testing should be limited to the following:
• Hospitalized patients with influenza-like illness
• Health care workers with influenza-like illness in direct care patient settings in consultation with their health care provider
• Patients suspected to be, or is part of a cluster of undiagnosed respiratory illness only in consultation with public health.

Rhode Island Department of Health
- General Questions (401) 222-8022, 8:30 AM - 4:30 PM
- Hospital based providers are instructed to call (401) 222-2577 to obtain testing approval
- Instructions for Collecting Nasopharyngeal Swab Specimens

Vermont Department of Health
- H1N1 Influenza: Updated Recommendations for Testing & Treatment
- New Testing Guidance: Now that novel H1N1 is the predominant influenza A type circulating in Vermont, testing should be limited to the following:
• Hospitalized patients with influenza-like illness
• Non-hospitalized patients with influenza-like illness who are significantly ill and have underlying health conditions that put them at risk for complications of influenza.
• Individuals with influenza-like illness from high-risk institutional settings such as long-term care facilities

Patients Hotlines & Information

DaVita: 800-400-8331
Fresenius: 800-626-1297
DCI: 866-424-1990
DSI: 877-374-3375
ARA: 888-880-6867
NKF: 888-33-KIDNEY (888-335-4363)
AKF: 866-300-2900

Tools

Cough Safe Video
Hand Washing Pledge
Pandemic Flu Planning Checklist for Individuals with Chronic Kidney Disease and Their Families
H1N1 (swine flu) Virus Testing & Treatment Algorithm for Clinicians


Natural Disasters & Severe Weather

Please visit the CDC website http://www.bt.cdc.gov/disasters/ for information on natural disasters and severe weather preparedness and response.

Open and Closed Dialysis Facilities

Find and open/closed dialysis facility at http://www.dialysisunits.com

Network of New England Toll Free Number

866-286-ESRD (3773)


Provider Preparedness

Emergency Preparedness for Dialysis Facilities
Dialysis Facility Plan Template
Provider Disaster "To Do" List
The Four Keys to Being Prepared
Disaster Patient Activity Report (DPAR) - used during an emergency only

The toll-free Emergency Hotline for patients and providers is 888-33-KIDNEY (888-335-4363). During non-emergency times, you will hear a recorded message.

Dialysis facilities provide life-sustaining treatment to patients with kidney failure. Therefore, it is imperative that they be prepared in the event of an emergency. Typically, dialysis facilities are not specified in state and local disaster plans. To ensure external support in the event of a disaster, it is recommended that facilities proactively contact the following organizations during their disaster preparedness planning phase:

· Local/regional emergency planning department
· Local/regional health department
· Local/regional social services department
· Emergency responders (fire, law enforcement, rescue)
· Utility providers (electricity, water, gas, telephone)
· Transportation vendors

CMS has instructed the Network to assist providers in having a comprehensive disaster plan in each dialysis clinic, provide educational materials to providers, and serve as a communications coordinating agent for major disasters that impact several providers in a specific area within the Network. During a major disaster, the Network is required to

· Post to a central website the status of open and closed providers
· Assist families/providers to determine the location of displaced dialysis patients
· Serve as a communication coordination center for strategic planning if a large geographic area in New England is impacted for an extended duration

For a full description of how the Network can assistance providers, please click on the following link. What the Network Can Do to Help Providers


Patient Preparedness

Patients in need of assistance in the New England area should first contact their dialysis or transplant provider, their local emergency management office, or the Network of New England.

The toll-free Emergency Hotline for patients and providers is 888-33-KIDNEY (888-335-4363). During non-emergency times, you will hear a recorded message.

Additional Emergency Hotlines

Network of New England Toll-Free Number: 866-286-ESRD (3773)
DaVita: 800-400-8331
Fresenius: 800-626-1297
DCI Donor Hotline/Transient Patients: 800-969-4438
DSI: 877-374-3375
ARA: 888-880-6867
AKF: 866-300-2900
NKF: 888-33-KIDNEY (888-335-4363)
FEMA: 800-621-FEMA (3362) or TTY 1-800-462-7585
National Emergency Family Registry and Locator System (NEFRLS):
Register/Search 800-588-9822
American Red Cross "Safe and Well" website

Resources

Patients should also prepare themselves for emergency situations that may prevent them from getting to their dialysis treatment.

Preparing for Emergencies: A Guide for People on Dialysis
Prepárese para Emergencias: Una guía para personas en diálisis
Patient Disaster "To Do" List
Save a Life Fact Sheet
ANNA's Peritoneal Dialysis Travel Tool Box
Find and open/closed dialysis facility
Links to kidney-related organizations
Kidney Community Emergency Preparedness and Response has essential information to help dialysis patients, transplant recipients and kidney health care professionals before and during emergencies.


Kidney Community Emergency Response (KCER) Coalition

In January 2006, the Kidney Community Emergency Response (KCER) Coalition was formed in an effort to minimize disruption to life-sustaining dialysis and transplant services, and to ensure that national resources are in place to assist state and local response efforts in meeting the life saving medical needs of individuals with kidney failure in the event of a disaster.

KCER Brochure

KCER is comprised of partners from the kidney community, representing:

  • Patient and professional organizations
  • Practitioners serving the patient with kidney failure, such as nurses, technicians, dietitians, social workers, and physicians
  • Providers, including independent dialysis facilities, large dialysis organizations and transplant facilities
  • Hospitals
  • Suppliers
  • ESRD Networks
  • State emergency and survey representatives
  • Federal agencies, including the FDA, CDC, NIH and CMS

There are currently eight Response Teams which focus on a certain area for preparedness and response activities. Response Teams are:


Office of Emergency Management (by State)

Connecticut Office of Emergency Management
Department of Emergency Management and Homeland Security
360 Broad Street
Hartford, Connecticut 06105
(860) 566-3180
FAX (860) 247-0664

Maine Emergency Management Agency
45 Commerce Drive, Suite #2
#72 State House StationAugusta
Maine 04333-0072
(207) 624-4400
FAX (207) 287-3180

Massachusetts Emergency Management Agency
400 Worcester Road
Framingham, Massachusetts 01702-5399
(508) 820-2000
FAX (508) 820-2030

New Hampshire Department of Safety, Homeland Security and Emergency Management
33 Hazen DriveConcord
New Hampshire 03305
(603) 271-2231
FAX (603) 225-7341

Rhode Island Emergency Management Agency
645 New London Avenue
Cranston, Rhode Island 02920-3003
(401) 946-9996
FAX (401) 944-1891

Vermont Emergency Management Agency, Department of Public Safety
Waterbury State Complex
103 South Main Street
Waterbury, Vermont 05671-2101
Toll-Free Emergency Number (800) 347-0488
FAX (802) 244-8655


SNAPS - Snap Shots of State Population Data

SNAPS provides local-level community profile information nationwide. It can be browsed by county and state and searched by zip code. SNAPS serves as a valuable tool when responding to public health emergency events at the state, Tribal, and local levels. It provides a "snap shot" of key variables for consideration in guiding and tailoring health education and communication efforts to ensure diverse audiences receive critical public health messages that are accessible, understandable, and timely.


Influenza Pandemic Preparedness

In recent years, a small number of people living in Asia have contracted a strain of the flu virus which normally affects birds. It appears that the illness was passed through contact with infected birds, not through human-to-human contact. Nevertheless, this strain of flu seems to be especially potent, with a high rate of death among those who have contracted the illness.

There is concern that this strain of avian flu, if its mode of transmission changes to human-to-human contact, could lead to a worldwide outbreak, also known as a pandemic. Currently, humans cannot contract the illness from contact with one another. But, health officials are preparing for an eventual flu pandemic, whether it is caused by this particular strain of the flu virus or some other.

Below are links to websites that have a wealth of information on the avian flu and what is being done to prepare for a potential pandemic.

Department of Labor's Occupational Safety & Health Administration (OSHA)
OSHA recently released Guidance on Preparing Workplaces for an Influenza Pandemic, which addresses what employers can do to protect employees, plan for workforce depletion, and maintain operations during a pandemic. This guide also provides links to other helpful resources.

Centers for Disease Control and Prevention
Get information on the National Vaccine Program Office's FluAid software.

The Pandemic Influenza Toolkit assists healthcare professionals in discussing pandemic flu with patients and caring for them in the event that the virus spreads.

Sign up to receive email updates from the CDC! Complete a subscription profile, and you will get updated information on the items of interest to you, including influenza and avian flu.

For Patients and Families

Pandemic Flu Planning Checklist for Individuals with Chronic Kidney Disease and Their Families
Keeping Yourself Safe From Bird Flu (Travel Tips)
Pandemic Preparedness: Most Important Things to Know

For Providers and Healthcare Workers

Immunization Action Coalition's Influenza Vaccination Pocket Information Guide
Updated Infection Control Measures for Prevention and Control of Influenza in Healthcare Facilities
Stockpiling Antivirals Algorithm
Pandemic Preparedness: Most Important Things to Know

General

Pandemic Flu Information
World Health Organization (WHO): Epidemic and Pandemic Alert and Response (EPR)
United States Department of Health and Human Services Pandemic Influenza Plan

Below is a list of state website postings designed to provide information and emergency actions plans for the general public to follow should this anticipated pandemic occur. By clicking on the blue hyper text a state resident will be linked to the disaster plan for their individual state.

Connecticut Pandemic Influenza Response Plan
Maine Pandemic Influenza Plan and Executive Summary
Massachusetts Influenza Pandemic Preparedness Plan
New Hampshire Interim Influenza Pandemic Epidemiologic and Surveillance Plan
Rhode Island Pandemic Influenza Plan
Vermont Pandemic Influenza Response Plan



Useful Links

30 Hazel Terrace | Woodbridge, CT 06525 | Ph: 203-387-9332 | Fax: 203-389-9902 | info@nw1.esrd.net